About this Blog

I cannot begin to explain how I felt when my son's disease "really" hit me. I was scared, confused, but most of all- I didn't feel like talking to anyone.  

I would give anything if no other EB parent ever had to feel that way. I wanted to create a blog to share any information about EB that I can- so that any parent can log on anytime and hopefully find something that helps. 

If my blog helps just ONE parent with ONE issue- it was worth it. This is not a blog saying these are the "right" things to do- it's simply saying what I, as an EB mom, have done. I have learned something new every day and I am still learning with each new issue that comes up. 

It will be done slowly- as I have the time.

So if there are any questions or suggestions, send me an e-mail:)
courtneyhroth@gmail.com